Friday, April 18, 2014

Fundraiser for Paul Jansen

Help Paul Jansen beat Meniere's Disease

We at the Meniere's Project are the friends of Paul Jansen, a musician and instructor who is now out of work due to Meniere's disease.

Meniere's is a progressive illness of the inner ear that causes hearing loss, vertigo, tinnitus, balance issues, eye problems, and a host of other problems that make it very difficult for people to function in daily life.

Paul is a very responsible and hard working person, and a talented musician with a great sense of humor.  He has a history of being generous with his time and energy when others have needed him.  In his last job, he took great joy in helping others become the very best they could be.  And he has always enjoyed a challenge.

In 2008, Paul was diagnosed with a tumor that destroyed the hearing and balance on his left side, and caused problems with his left eye. A year later, he had a bone anchored hearing aid implanted, which required surgery on his skull.  Other than a few pictures and stories shared with friends, it was all over quickly. Paul and his wife quietly financed his treatment, and he was promptly back to work after surgery.  We have attached some pictures from these procedures.  As you can see, this is not someone who is easily beaten down by life's tests.

But his diagnosis of Meniere's is one that could easily beat him without your help.

 The illness has begun destroying the hearing and balance on his remaining ear, and has already rendered the bone anchored hearing aid (which relied on his good ear) useless.  He is suffering from severe fatigue and short term memory issues, and is often unable to drive due to the extreme dizziness from Meniere's.  He now has difficulty reading because of the nystagmus it causes that makes his vision blur.

He's unable to pursue his passions, or have much of a professional or social life.  He has begun spending his days trying to advise and educate others who suffer from Meniere's Disease, using his voiceover and performance skills to make informational videos on the illness for the newly diagnosed, even though it takes much more time and energy out of him than it used to.  He is facing extreme disability at an early age, but we know there is so much more left that he can accomplish.

Paul is pursuing a treatment that is experimental, but has been shown to provide very promising among those who have tried it.  Meniere's is largely believed to be caused by a viral infection in the mucosa affected lymphoid tissue, and the treatment targets both the infection, and the damage to the immune system that it causes.  More of the technical details will be shared in updates here and on the webpage and YouTube channel linked below.

The treatment is expensive, and Paul's funds are depleted due to previous medical expenses, which is why he and his friends and family are asking for help.
We know that we are living in very difficult economic times, and there are millions who are struggling. We humbly ask that you consider this campaign.  Any and all donations of any size are greatly appreciated. If you are unable to contribute financially, you can still help tremendously by sharing this campaign so that others may get to know Paul as we do, and help as they can.
See more at:

The Meniere's Project Youtube Channel
Paul's Facebook Page
Paul's Fundraiser Site

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